Alice Wong “(she/her) is a disabled activist, writer, editor, and community organizer. Alice is the founder and director of the Disability Visibility Project, an online community dedicated to creating, sharing, and amplifying disability media and culture.” Wong has created many conversation spaces for people to share their disabled experiences and tell their stories proudly.
In January 2024, Wong turned to her audience to seek justice for the lack of COVID precautions and other poor treatment as an immunocompromised patient in the intensive care unit at UCSF Health. In a blog post, she says, “I call upon you all to help me push for an N95 mask mandate at UCSF Health.” Wong says she delayed going to the hospital to seek treatment for her cracked J-Tube out of worry about potential exposure to the rising J-1 COVID-19 variant. Wong argues that “No one should have to delay care or risk infection from COVID when receiving necessary medical care.”
Her blog post includes the full letter of patient complaint she sent to the Office of Patient Relations at UCSF Health asking for a reinstatement of masking mandates in the hospital. She asks her audience to send a similar email and “demand UCSF Health require that all staff, visitors, and patients wear an N95 mask in all of their locations. ”
She signs her letter: “Alice Wong, a disabled patient that wants UCSF Health to do better.”
-Stephanie Farmer